Sorry this is going to be all treatment all the time so if
you don’t want to know about the Provenge treatment I had a year ago last month
you might want to think about moving on to your desktop hangman [ooo gallows humor twice] game or some
such but I’ve had some requests about Provenge.
Please keep in your mind that the guy writing this post is
no doctor. Someone vomits and I’m
running the opposite direction hoping someone else takes care of the vomiter
lest I turn into the vomitee. Hell, one
time I ran my pick up, albeit slowly, into a telephone pole because my dog threw
up in the front seat and I instantly became vomitee. Hey she was a big dog. So no doctor could I be.
With the Provenge treatment you will have to do two steps
twice for a total of four steps. Get the
dumb cells through a process called Pheresis and ship them to boot camp. Then two days later get the Ninja cells back
in your body via infusion. Then a couple
weeks later do it again.
As I understand it, Provenge is a teacher of sorts. The nurses grab a few dumb cells from you that the
Evil Empire has confused, sends them to school to become prostate cancer Ninjas,
then put those kick ass smart cells back in to you. Those
Ninja T-cells go to work on the Evil Empire.
Not to defeat the Evil Empire but, like my Ninjas have done, to slow the
Evil Empires progress down. Sounds scary?
Well it is for the cancer cells but it’s neither scary nor painful if you
follow a few tricks.
Here’s the first trick:
While you are reclining, depending on your weight for a
couple hours at least, in the very comfortably padded Pheresis chair watching your DVD
of choice, reading or having a nice conversation with the very attentive nurse
a number of things will happen.
You’ll
have to pee.
Peeing for someone with advanced prostate cancer is a
humility most of the healthy don’t have to experience. But, and remember this for the reading
scratching your anything hint, you can
not get out of the chair before they have retrieved your dumb cells. It’s not like an IV where the IV drags you along like some leashed puppy dog. You
are attached to an immovable machine so peeing involves a bottle and the nurse
doing the best to preserve your dignity.
Pee before you get in the chair even if you have to turn the faucet on
and stand in front of the porcelain for fifteen minutes with everyone waiting. Trust me on this.
Second trick:
Many men refuse to have a Hickman Tri- Fusion Catheter
installed. DO IT. Put One In. It is not
hard to keep clean no matter what you’ve heard. Maybe more on that in some other post.
The
consequences of not having the catheter installed are myriad a few being; the IV
needles are huge and not flexible. You
can’t bend your arms [yes you will have a needle in the “in” arm and a needle
in the “out” arm] so you can’t move for hours forget about reading a book. Because you can’t move your arms you can forget
about scratching anything. Remember how
frustrating the last trip to the MRI was with how badly your nose itched?
Your veins will probably, not sure what word
to use, collapse and in the future those veins won’t cooperate with the nurse
whom is desperately trying not to jab you.
Third:
Even if you’ve had a recent hot flash take the offered blanket you
will get cold.
I weighed 225 and I was in the Pheresis chairs for a little more then three
hours for both my visits. The mechanics
of skimming dumb cells and sending them to school sounds complicated. Rest assured for me there was no pain, no
panic. In fact I would take my lap top
with me, work for an hour and take a blessed nap for two hours. Any of you seriously reading this for
information know how great it is to be able to take a nap.
I know
that Provenge was a benefit I hadn’t expected and will tell you tomorrow how they get the Ninja T cells back into you so
they can fight the Effing Evil Empire.
Remember how exciting it is when "that number" goes down. Provenge makes sense and worked for me.
For those of you worried about the catheter
I’ll tell you how that’s a nothing and throw in a funny story about the Surgery Police [this gal was pretty over zealous].
But that will be after the Ninja Provenge
post.
Now, quit worrying and go do your taxes.
Talk to you later
Thanks for the update. Glad to read that you're doing well and that Provenge was beneficial to helping you battle this menacing disease.Good luck and Godspeed!
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